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Brain Awareness Week and One Man's Crusade
national |
health / disability issues |
press release
Thursday March 13, 2008 17:17 by Ann Keilthy - Parkinson's Association of Ireland and its PALS Branch for younger peole with Parkinson's and their youngparkinsons at eircom dot net 087 2853117
Tom is a metaphor for this week We have had a week of events around the theme of the brain, and awareness of the 700.000 people in Ireland with a brain disorder ranging from Migraine, Acquired Brain Injury to MS and Parkinson's and Alzheimer's, all events coordinated through the Neurological Alliance of Ireland. This week, Internatinal Brain Awareness Week has received a huge amount of publicity, focussing as it has on personal experiences, and an honest look at the present state of services for those with a neurological disorder in Ireland - through the media - TV, radio, newspapers, the internet, and conferences and meetings. On Sunday (March 16th), the last day of Brain Awareness Week, the PALS branch of the Parkinson's Association (the branch for those diagnosed at a younger age) have a special meeting, in the Marine Hotel in Sutton at 3pm on Sunday March 16th, which is an open meeting because of its relevance to the Week, and indeed because it is testimony to the strength of the human spirit. Tom Isaacs repeats to anyone who listens: "I want to be known as the man who used to have Parkinson's". That sentence dictates what has become his life's work - for Tom actively campaigns for better services, with a specific focus - fundraising for research into promising avenues that will finally rid him and others of the neurological disorder. |